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Researchers call for oversight and governance of care home data

Researchers have called for a new national framework for care home data – to benefit residents and inform Scotland’s health and social care services.

The research by Edinburgh Napier University recommends developing an overseeing body and a more established process for routinely collecting care home data. According to researchers, the benefits include more effective care decisions, improved services, informed research and increased data-driven innovation.

The research also highlights the need for a clear pathway to follow for accessing ethical and governance approval for the re-use of data.

Lucy Johnston, research lead and senior research fellow at Edinburgh Napier University’s School of Health and Social Care, said: “Amid the prospect of a National Care Service, there is a real desire to understand and address the issues faced by the sector.   

Fellow co-author Dr Susan D Shenkin, Reader in Ageing and Health at the Usher Institute and Advanced Care Research Centre within the University of Edinburgh said: “This report builds on our work showing that a care home data platform must have strong foundations to ensure it meets the needs of care home residents, their families and the staff who care for them.”

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