Scotland has set out five general ethical principles to underpin its first data strategy.
Set out in the Data Strategy for Health and Social Care are the following broad goals:
- Maintain a people-centred approach and ensure data is collected, organised, and made available in a manner that is intended to suit the individual’s needs, and supports compassionate care
- Keep health and social care data safe and secure in order to maintain public confidence and trust in our management of data
- Be clear about the intended benefits and potential risks that arise from our use of health and social care data for individual care, performance, and research.
- Increase individuals’ involvement in the development, design and improvement of health and social care data use in Scotland
- Take an equalities and human rights-based approach, ensuring we always maintain a choice in non-digital routes to access health and social care data.
The strategy, which includes care homes, will have eight specific strands:
- ethical approaches of data
- data access
- talent and culture
- protecting and sharing data
- technology and infrastructure
- information standards and interoperability
- creating insights from data
- supporting research and innovation.
The Scottish Government has also published further information on the scope of the Health and Care (Staffing) (Scotland) Act 2019, which is expected to come into force in April 2024.